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Dark Underbelly of the President's New Freedom Commission on Mental Health
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By Michael Ragland

 
 
Having attended the June 16th Prince William County Community Services Board meeting in Northern Virginia whose purpose was to discuss possible changes to its mission statement I learned from Director Tom Geib  that Inspector General James Stewart had visited "emergency services" and discovered the staff weren't familiar with "recovery principles". I can understand the Inspector General wanting all branches to be familiar with "recovery principles" but emergency services deals with those who need help, not recovery.
 
 There has been a break in the continuum of emergency services with the introduction of "community crisis stabilization" services. At present these services include:
 
Residential crisis stabilization (TDO) - Like the service below, but licensed to accept TDOs, with 24 hour nursing on site, M.D. daily and on-call for assessments and interventions. All of the current crisis stabilization programs are considering accepting TDOs.

Residential crisis stabilization service (voluntary) - 24 hour, CSB-operated or contracted, group home model, available in emergencies, sufficient staffing ratios to provide intensive supports to persons in crisis. Includes nursing on site and MD consultation/visits. (This model of crisis stabilization is currently used in three communities. The General Assembly funded seven additional programs 2005.)

In-Home residential support service – CSB staff goes to the consumer’s home and provide supports during crises, keep consumer safe and occupied. Level of support is matched to consumer need. Consumer focused, not program-focused

Consumer-run residential support service - “Safe house” program. CSB/consumer partnership agreement– many consumers prefer to be served by other consumers in a crisis.
 
All of these programs can be effective. The report mentioned defining crisis stabilization and coming up with alternatives. This push towards community based crisis stabilization services is intended to offset the high demand for public and private psychiatric bed space. There is no denying, however, there needs to be more public and private psychiatric bed space. Increasing community crisis stabilization services won't be so successful that this doesn't need to be done.
 
Recovery principles come into play with community crisis
stabilization/emergency services except as a means to prevent the mentally ill from utilizing public and private psychiatric bed space. Self determination, empowerment, and recovery are government code words for saving money and keeping expenses for the mentally ill down. There is nothing inherently wrong with this if it brings better care for the mentally ill. However, at a time when many mentally ill are in jails on petty charges; there is very little low income housing for the mentally ill; and there is a serious chronic shortage of both public and private psychiatric bed space, the President's New Freedom Commission on Mental Health initiative doesn't recommend any substantial funding for mental health but allocation of existing resources. Furthermore, it seeks to lower even existing resources for the mentally ill by supporting consumer operated and run services such as drop-in centers and community crisis stabilization services under the umbrella of emergency services.
 
In Prince William County CSB there is already community crisis stabilization services. At Community Apartments residents have a case manager and the number to emergency services is posted. Folks at group homes have case managers and a number to emergency services likely is provided. Those who live in section 8 apartments are more isolated.
 
Community crisis stabilization services shouldn't be a part of emergency services. The fact that only something like 21% of CSB emergency services were familiar with community crisis stabilization services should tell one something. Very few mentally ill need a doctor or nurse onsite and if they do they probably belong in the hospital. Community crisis stabilization services should be apart of MH residential services, not emergency services. By tacking on community crisis stabilization services to emergency services this conveys the impression "medical emergencies" will be resolved in the "community" rather than the hospital and promoting a shift against the usage of public and private psychiatric bed space. This could have negative consequences for some mentally ill. The hope of government is community crisis stabilization services under the umbrella of emergency services will ultimately lessen the need for more public and psychiatric bed space and thus requests for less funding.
 
            Recent "recovery principles" stems around the motto self determination, recovery, and
           empowerment. The genesis of this was the President's New Freedom
           Commission  on Mental Health. Despite the fact the Virginia DMHMRSAS mission          
           statement  is, "Our vision is of a “consumer-driven system of services and supports             that promotes self determination, empowerment, recovery, resilience, health, and the  highest possible level consumer participation in all aspects of community life including work, school, family and other meaningful relationships”  there is little actual substance in terms of policy.
 
Given the problems in mental health, it appears these "recovery principles" which have no
real substance are a purposeful distraction at the minimum and dramatically cutting or
eliminating services at the maximum. The best thing about the President's New Freedom
Commission on Mental Health is it  doesn't cost much money. Here are just some
of the major chronic problems which haven't been dealt with sufficiently:
 
(a) There is a shortage of both private and public psychiatric bed space; in Northern Virginia it is  serious and chronic.
 
(b) There are mentally ill being arrested and languishing in jails on petty charges.
 
(c) There is a serious shortage of low income residential housing for the mentally ill.
 
Self determination, empowerment, and recovery won't address these chronic problems. Only an influx of state and federal funding will. Lawmakers have known these facts for years but nothing ever significantly improves. Instead  advocates such as myself are always expecting things to worsen and at best retain services  which exist without managed care plowing through. Many accept the status quo. Unfortunately, the attention and criticism toward the President's New Freedom Commission on Mental Health was confined to the Texas Medication Algorithm Program (TMAP) and screening of children for mental illness. The colossal propagandized hoax of self determination, empowerment, and recovery and consumer run and operated services has gone relatively unchallenged and have been somewhat "successful".
 
 
The President's New Freedom Commission's Final Report called into question the design of many mainstream social welfare programs serving people with serious mental illness, implying that Social Security's Supplemental Security Income (SSI) Social Security Disability Income (SSDI) are part of the problem and not the solution. It states, "Moreover, the largest Federal program that supports people with mental illnesses is not even a health services program - the Social Security Administration's Supplemental Security Income (SSI) and Social Security Disability Income (SSDI) programs, with payments totaling approximately $21 billion in 2002." There are eligibility requirements for receiving these benefits as well as Medicaid and Medicare and without them many mentally ill would not be able to pay their rent and buy groceries. For the seriously mentally ill without SSI and/or SSDI they would be living with family or homeless on the streets. Without Medicaid and /or  Medicare they wouldn't receive any health insurance coverage.
 
Overall, in fiscal year 2002 twenty-four billion was spent on Medicare and Medicaid; twenty-one billion on SSDI and SSI; four hundred and forty three million in Community Block Grants through SAMSA and additional funding for housing, rehabilitation, education, child welfare. substance abuse, general health, criminal justice and juvenile justice. All together this information suggests around 46 billion dollars a year spent (in 2002).
 
The Final Report states, "Each program has its own complex, sometimes contradictory, set of rules. Many mainstream social welfare programs are not designed to serve people with serious mental illnesses, even though this group has become one of the largest and most severely disabled groups of beneficiaries. " This is likely measured by their rate of unemployment rather than status of mental health.  The report goes on to say, "If this current system worked well, it would function in a coordinated manner, and it would deliver the best possible treatments, services, and supports. However, as it stands, the current system often falls short. Many people with serious mental illnesses and children with serious emotional disturbances remain homeless or housed in institutions, jails, or juvenile detention centers. These individuals are unable to participate in their own communities."
 
Actually, the current system works remarkably well despite the Commission's statement to the contrary. Certainly better without these support systems. It does work in a coordinated manner and it has in some areas provided the best possible treatments, services, and supports. Because of the complexity of servicing the needs of the mentally ill in the public mental health system it is impossible to have all services coordinated at the same time. There are eligibility requirements for Medicaid, Medicare, SSI, and SSDI. If you make too much money at a job you won't have Medicaid coverage. You won't get Medicare coverage unless you have SSDI. The amount of food stamps you receive depends upon your income.
 
Many people with serious mental illnesses and children with serious emotional disturbances do remain homeless or housed in institutions, jails, or juvenile detention centers. In the cases where the seriously mentally ill are housed in jails with little or no mental health services and support it is obvious they need to be transferred to a psychiatric institution. Children with serious emotional disturbances need mental health services and support. It all gets back to money and whether we as a society think it is worthwhile to provide these services to the mentally ill. Clearly, we don't.
 
The "recovery movement"  prior to the New Freedom Commission on Mental Health goes way
back to Dorothea Dix and Clifford Beers whom if they were alive today would probably  not be
totally pleased with the so-called mental health movement today as artificially pumped up by the
Commission. Rather than language of self-determination, empowerment, and recovery which
in present context conveys a false hope any disabled person can be like Mr. Jones down the
street, what the mentally disabled need are dedicated state and federal funding streams for
hospital beds, more low income housing, more reimbursement to private providers, more
state oversight of private providers, and heavy fines when there are violations.
 
This facade of the "consumer" being the ultimate end point must end. Without links a chain
link fence will ultimately fall down. The emphasis on self-determination, empowerment,
recovery and consumer operated services/peer support is a camouflage by this
administration to get out of the business of providing governmental mental health services. It's
proponents are well aware of this and thus it is a multi-year long term goal.
 
The recommendations of the President's New Freedom Commission on Mental Health and the states which are carrying it out in essence is just Darwinism. It is saying to the mentally ill be self-determined, empowered, and recovered so we don't have to provide funding for you and those who can't stand up on their own will just have to fall down.

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